Endometriosis - Comments

  • NewWriter2019

    NewWriter2019 (100)

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    @ Park Jimin
    I don't think it's a sexist world, in my case at least, it was a tricky operation. I also had huge, very huge, internal fibroids, some as big as a piece of hail lining the inside of my uterus. For some doctors the riskier the surgery the less they want to do it because of the liability factor. If you should get hurt because they feel uncomfortable doing the surgery then that is a potential lawsuit that puts a black mark on their record. I guess in a way instead of being honest with the patient and saying they don't know how to do it, they use the fact that someone else should do it instead and get really vague about it.
    February 5th, 2019 at 11:56pm
  • Sansa Stark

    Sansa Stark (930)

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    @ NewWriter2019
    It's just sad we can't even have the last word over own bodies. Sexist world!
    February 5th, 2019 at 11:53pm
  • NewWriter2019

    NewWriter2019 (100)

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    @ Park Jimin
    yes, I went through that too. It took me almost 4 years to get the surgery even in the U.S. They were hesitant because I was still of childbearing age and they thought that bearing children would ease my pain enough that I could live with it. I told doctor after stupid doctor that my uterus would have burst if I tried to carry to term killing both me and the baby and they still thought I could do it with minimal risk. Then they tried to tell me that if I did manage to carry to term that I'd be a high-risk pregnancy? The doctors never made any sense and I didn't get pain management at all. My pain management was taking over the counter medications and going to sleep for a week (if I could.).
    February 5th, 2019 at 11:47pm
  • Sansa Stark

    Sansa Stark (930)

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    @ NewWriter2019
    In the UK, surgeons are very iffy about removing anything and we do get the good old discourse about children. I personally don't want kids at all for many reasons that I shouldn't even feel obligated to list to a doctor in order to be presented to a possible cure for my illness. What annoys me is that, instead of telling me about side effects and possible risks of the operation, what I always get is a condescending speech about my future children and how I'm too young to know if I really want kids (I'm 27). For now, my only form of pain management is pills that take a toll on my liver.
    February 5th, 2019 at 11:20pm
  • NewWriter2019

    NewWriter2019 (100)

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    I had endometriosis and the only treatment left for me was the removal of my uterus in its entirety. I had the surgery done in May of 2018 and honestly, I love it, however, what I don't like are the effects of being pushed directly into menopause at 38 years old. Now I am noticing odd aches and pains that were never there before the surgery, or if they were there they were covered up by my more severe problems. I live in the U.S. and had stage 3 of this condition. My surgeon said that it was like chocolate syrup running through my body and I had old wounds that were opening up every month and then trying to heal only to be busted open again. It was the most painful thing I ever lived through. I pray for all the women affected by this condition.
    February 5th, 2019 at 11:15pm
  • Sansa Stark

    Sansa Stark (930)

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    *gyno not fyno lol
    November 18th, 2017 at 10:40am
  • Sansa Stark

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    @ lady_enygma
    I was just very recently diagnosed and my fyno is looking into possible treatments. I also have PCOS, as if one wasn't enough ;_; so far I was only given very strong drugs for the pain so that I can function normally during my period.
    November 18th, 2017 at 10:40am
  • lady_enygma

    lady_enygma (100)

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    Nice to see an article about it. I have been suffering with it since I started my periods when I was 17, and have only just been formally diagnosed this year. I'm now having hormone therapy that shuts my remaining ovary down. They don't want to remove it due to my age but if my symptoms improve (which they have massively improved in the 2 months since I started the treatment) then this time next year they may consider removing everything. I've had a total of seven laparoscopies, I've been hospitalised due to the pain many times, there really is no real way to describe just how debilitating this can be. The amount of times it was misdiagnosed as something else is amazing. if you don't get anywhere at first, be persistent. Eventually they have to do something
    November 18th, 2017 at 01:35am